Neurofibromatosis a handbook for patients, families, and health care professionals
Rubenstein, Allan E., Korf, Bruce RHere is the state-of-the-art on recognizing, managing and living with
neurofibromatosis (NF) for patients, families, and health care professionals.
From new genetic and diagnostic advances, to associated cardiovascular and
endocrine abnormalities, to the significant psychosocial impact of NF, the book
is packed with clear, practical guidance for understanding and living with this
disability.
Special features:
- A complete diagnostic guide to help you recognize
NF-related symptoms--with a timeline for when they might appear - New treatment options for NF, including pain control
- Coverage of the newly discovered form of NF,
schwannomatosis - Personal perspectives from NF patients and their
families - Glossary that defines medical terminology
With the great diagnostic and treatment advances achieved in the last decade,
and research proceeding rapidly, the future for patients with NF has never been
brighter. For all individuals living with the challenges of this disability, the
book brings you to the forefront of medical knowledge. Make sure it is within
close reach for fast and easy reference.